Recommendations for assessing patient-reported outcomes and health-related quality of life in patients with urticaria: a GA(2) LEN taskforce position paper

Stefania La Grutta, Bousquet, Todo Bom, Kocatürk, Giménez-Arnau, Fokkens, Gianenrico Senna, Bousquet, Giorgio Walter Canonica, Maurer, Terreehorst, Compalati, Godse, Brzoza, Sanchez-Borges, Mota-Pinto, Erminia Ridolo, Ilaria Baiardini, Stefania La Grutta, ToubiBindslev-Jensen, Zuberbier, Grattan, Alessandro Fiocchi, Grob, Carlo Lombardi, Gerth Van Wijk, Saini, Fulvio Braido, Kalogeromitros

    Risultato della ricerca: Articlepeer review

    60 Citazioni (Scopus)

    Abstract

    The aim of this Global Allergy and Asthma European Network (GA(2)LEN) consensus report is to provide recommendations and suggestions for assessing patient-reported outcomes (PROs) including health-related quality of life in patients with urticaria. We recommend that PROs should be used both in clinical trials and routine practice for the evaluation of urticaria patients. We suggest that PROs should be considered as the primary outcome of future clinical trials. Two validated and disease-specific instruments for assessing PROs are available, the urticaria activity score (for symptoms) and the chronic urticaria questionnaire on quality of life CU-Q(2)oL. This latter tool, CU-Q(2)oL, is available in many languages and should be preferred, where available, over more generic instruments for assessing urticaria-specific effects on quality of life. CU-Q(2)oL is only suited for the investigation of patients with chronic spontaneous urticaria. Similar instruments for other forms of urticaria have yet to be developed and validated. Also, tools for assessing other chronic spontaneous urticaria PROs besides quality of life and symptoms are needed.
    Lingua originaleEnglish
    pagine (da-a)840-844
    Numero di pagine5
    RivistaALLERGY
    Volume66
    Stato di pubblicazionePublished - 2011

    All Science Journal Classification (ASJC) codes

    • Immunology and Allergy
    • Immunology

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