Recommendations for assessing patient-reported outcomes and health-related quality of life in patients with urticaria: a GA(2) LEN taskforce position paper

Stefania La Grutta, Bousquet, Todo Bom, Kocatürk, Giménez-Arnau, Fokkens, Gianenrico Senna, Bousquet, Giorgio Walter Canonica, Maurer, Terreehorst, Compalati, Godse, Brzoza, Sanchez-Borges, Mota-Pinto, Erminia Ridolo, Ilaria Baiardini, Stefania La Grutta, ToubiBindslev-Jensen, Zuberbier, Grattan, Alessandro Fiocchi, Grob, Carlo Lombardi, Gerth Van Wijk, Saini, Fulvio Braido, Kalogeromitros

    Risultato della ricerca: Article

    53 Citazioni (Scopus)

    Abstract

    The aim of this Global Allergy and Asthma European Network (GA(2)LEN) consensus report is to provide recommendations and suggestions for assessing patient-reported outcomes (PROs) including health-related quality of life in patients with urticaria. We recommend that PROs should be used both in clinical trials and routine practice for the evaluation of urticaria patients. We suggest that PROs should be considered as the primary outcome of future clinical trials. Two validated and disease-specific instruments for assessing PROs are available, the urticaria activity score (for symptoms) and the chronic urticaria questionnaire on quality of life CU-Q(2)oL. This latter tool, CU-Q(2)oL, is available in many languages and should be preferred, where available, over more generic instruments for assessing urticaria-specific effects on quality of life. CU-Q(2)oL is only suited for the investigation of patients with chronic spontaneous urticaria. Similar instruments for other forms of urticaria have yet to be developed and validated. Also, tools for assessing other chronic spontaneous urticaria PROs besides quality of life and symptoms are needed.
    Lingua originaleEnglish
    pagine (da-a)840-844
    Numero di pagine5
    RivistaALLERGY
    Volume66
    Stato di pubblicazionePublished - 2011

    Fingerprint

    Urticaria
    Quality of Life
    Clinical Trials
    Patient Reported Outcome Measures
    Consensus
    Hypersensitivity
    Language
    Asthma

    All Science Journal Classification (ASJC) codes

    • Immunology and Allergy
    • Immunology

    Cita questo

    Recommendations for assessing patient-reported outcomes and health-related quality of life in patients with urticaria: a GA(2) LEN taskforce position paper. / La Grutta, Stefania; Bousquet; Todo Bom; Kocatürk; Giménez-Arnau; Fokkens; Senna, Gianenrico; Bousquet; Canonica, Giorgio Walter; Maurer; Terreehorst; Compalati; Godse; Brzoza; Sanchez-Borges; Mota-Pinto; Ridolo, Erminia; Baiardini, Ilaria; La Grutta, Stefania; Toubi; Bindslev-Jensen; Zuberbier; Grattan; Fiocchi, Alessandro; Grob; Lombardi, Carlo; Gerth Van Wijk; Saini; Braido, Fulvio; Kalogeromitros.

    In: ALLERGY, Vol. 66, 2011, pag. 840-844.

    Risultato della ricerca: Article

    La Grutta, S, Bousquet, Todo Bom, Kocatürk, Giménez-Arnau, Fokkens, Senna, G, Bousquet, Canonica, GW, Maurer, Terreehorst, Compalati, Godse, Brzoza, Sanchez-Borges, Mota-Pinto, Ridolo, E, Baiardini, I, La Grutta, S, Toubi, Bindslev-Jensen, Zuberbier, Grattan, Fiocchi, A, Grob, Lombardi, C, Gerth Van Wijk, Saini, Braido, F & Kalogeromitros 2011, 'Recommendations for assessing patient-reported outcomes and health-related quality of life in patients with urticaria: a GA(2) LEN taskforce position paper', ALLERGY, vol. 66, pagg. 840-844.
    La Grutta, Stefania ; Bousquet ; Todo Bom ; Kocatürk ; Giménez-Arnau ; Fokkens ; Senna, Gianenrico ; Bousquet ; Canonica, Giorgio Walter ; Maurer ; Terreehorst ; Compalati ; Godse ; Brzoza ; Sanchez-Borges ; Mota-Pinto ; Ridolo, Erminia ; Baiardini, Ilaria ; La Grutta, Stefania ; Toubi ; Bindslev-Jensen ; Zuberbier ; Grattan ; Fiocchi, Alessandro ; Grob ; Lombardi, Carlo ; Gerth Van Wijk ; Saini ; Braido, Fulvio ; Kalogeromitros. / Recommendations for assessing patient-reported outcomes and health-related quality of life in patients with urticaria: a GA(2) LEN taskforce position paper. In: ALLERGY. 2011 ; Vol. 66. pagg. 840-844.
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    abstract = "The aim of this Global Allergy and Asthma European Network (GA(2)LEN) consensus report is to provide recommendations and suggestions for assessing patient-reported outcomes (PROs) including health-related quality of life in patients with urticaria. We recommend that PROs should be used both in clinical trials and routine practice for the evaluation of urticaria patients. We suggest that PROs should be considered as the primary outcome of future clinical trials. Two validated and disease-specific instruments for assessing PROs are available, the urticaria activity score (for symptoms) and the chronic urticaria questionnaire on quality of life CU-Q(2)oL. This latter tool, CU-Q(2)oL, is available in many languages and should be preferred, where available, over more generic instruments for assessing urticaria-specific effects on quality of life. CU-Q(2)oL is only suited for the investigation of patients with chronic spontaneous urticaria. Similar instruments for other forms of urticaria have yet to be developed and validated. Also, tools for assessing other chronic spontaneous urticaria PROs besides quality of life and symptoms are needed.",
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    AU - La Grutta, Stefania

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    AU - Todo Bom, null

    AU - Kocatürk, null

    AU - Giménez-Arnau, null

    AU - Fokkens, null

    AU - Senna, Gianenrico

    AU - Bousquet, null

    AU - Canonica, Giorgio Walter

    AU - Maurer, null

    AU - Terreehorst, null

    AU - Compalati, null

    AU - Godse, null

    AU - Brzoza, null

    AU - Sanchez-Borges, null

    AU - Mota-Pinto, null

    AU - Ridolo, Erminia

    AU - Baiardini, Ilaria

    AU - La Grutta, Stefania

    AU - Toubi, null

    AU - Bindslev-Jensen, null

    AU - Zuberbier, null

    AU - Grattan, null

    AU - Fiocchi, Alessandro

    AU - Grob, null

    AU - Lombardi, Carlo

    AU - Gerth Van Wijk, null

    AU - Saini, null

    AU - Braido, Fulvio

    AU - Kalogeromitros, null

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    N2 - The aim of this Global Allergy and Asthma European Network (GA(2)LEN) consensus report is to provide recommendations and suggestions for assessing patient-reported outcomes (PROs) including health-related quality of life in patients with urticaria. We recommend that PROs should be used both in clinical trials and routine practice for the evaluation of urticaria patients. We suggest that PROs should be considered as the primary outcome of future clinical trials. Two validated and disease-specific instruments for assessing PROs are available, the urticaria activity score (for symptoms) and the chronic urticaria questionnaire on quality of life CU-Q(2)oL. This latter tool, CU-Q(2)oL, is available in many languages and should be preferred, where available, over more generic instruments for assessing urticaria-specific effects on quality of life. CU-Q(2)oL is only suited for the investigation of patients with chronic spontaneous urticaria. Similar instruments for other forms of urticaria have yet to be developed and validated. Also, tools for assessing other chronic spontaneous urticaria PROs besides quality of life and symptoms are needed.

    AB - The aim of this Global Allergy and Asthma European Network (GA(2)LEN) consensus report is to provide recommendations and suggestions for assessing patient-reported outcomes (PROs) including health-related quality of life in patients with urticaria. We recommend that PROs should be used both in clinical trials and routine practice for the evaluation of urticaria patients. We suggest that PROs should be considered as the primary outcome of future clinical trials. Two validated and disease-specific instruments for assessing PROs are available, the urticaria activity score (for symptoms) and the chronic urticaria questionnaire on quality of life CU-Q(2)oL. This latter tool, CU-Q(2)oL, is available in many languages and should be preferred, where available, over more generic instruments for assessing urticaria-specific effects on quality of life. CU-Q(2)oL is only suited for the investigation of patients with chronic spontaneous urticaria. Similar instruments for other forms of urticaria have yet to be developed and validated. Also, tools for assessing other chronic spontaneous urticaria PROs besides quality of life and symptoms are needed.

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    JO - Allergy: European Journal of Allergy and Clinical Immunology

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