The quality of life in developing age children with celiac disease

Lucia Parisi, Maria Stella Epifanio, Rosa Lo Baido, Sabina La Grutta, Michele Roccella, Orlando, Concialdi, Carotenuto, Esposito, Teresa Di Filippo

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41 Citations (Scopus)

Abstract

Aim. The moments that follow thè diagnosisof celiac disease and thè early stages of thègluten-free diet are extremely difficult andcomplex for parents and child, because theyface an important change punctuated by selfdenialand deprivation. The mairi objective ofthis research is to assess thè impact of celiacdisease on quality of life in subjects in developmentalage, taking into account thè perceptionsof parents about thè child's illness,•with thè aitn to highlight thè effect of diseaseon thè child and thè entire family.Methods. The study included both parents of45 children aged between 2 and 10 years, withestablished celiac disease. To evaluate thè effectof celiac disease on thè lifestyle of affectedchildren and their families has been used,after having adapted to thè Italian context, thèImpact Scale of Childhood Diseases of Hoareand Russell (1995). This study shows that celiacdisease is a conditìon that has a significantimpact on both thè child and his family.Results and conclusion. The results obtainedby administration of Impact Scale of ChildhoodDiseases to parents showed that subjectsin developmental age with celiac diseasecould have difficulty on emotional levelthat affect child development and thè wholefamily context. Acceptance of thè illness bythè child depends mainly by how much
Original languageEnglish
Pages (from-to)599-608
Number of pages10
JournalMinerva Pediatrica
Volume65
Publication statusPublished - 2013

All Science Journal Classification (ASJC) codes

  • Pediatrics, Perinatology, and Child Health

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