LA “MALATTIA DEL BACIO SALATO”: STUDIO SULLA QUALITÀ DI VITA IN PAZIENTI ADULTI AFFETTI DA FIBROSI CISTICA

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Abstract

[automatically translated] Recent advances in the diagnosis and treatment of cystic fibrosis (CF) have allowed an improvement in life expectancy and a major increase in the percentage of individuals with CF who live and reach adulthood; objective of the study is to evaluate the emotional and psychological experience of adult patients with CF who belong regularly to Palermo center, Hypothesis: The present paper is the first exploratory study on the relationship between quality of life, alexithymia and resilience in adult CF patients. Our hypothesis is that good to regulate emotions resilient and adequate capacity capacity can act as a protective health factors contributing to good management of critical events (Cystic Fibrosis with its slow degenerative process) and to a better adaptation to the disease. I study, also it intends to investigate the relationship between psychological aspects and those doctors FC-specific. Methods: 40 adult patients (age> 18) pertaining to FC Palermo Center were asked to fill out psychological tests (Cystic fibrosis quality of life -CFQoL; the Toronto Alexithymia Scale-TAS20; the Resilience Scale-RS and the Brief Resilient Coping -BCRS stairs,) and the same subjects were collected sociodemographic and medical data values of the major FC-specific indices of past visits and last year. Results: The data, drawn from the bivariate correlations and linear regression models with blocks methods, confirmed the initial hypothesis that good resilient capacity and the absence of alexithymia are associated with a good quality of life. Furthermore, the study also highlighted other important connections between some significant subscales of CFQoL (such as emotional functioning, body image, social functioning, etc.) and tests for resilience. Conclusion: the interpretation of the data, carried out also on the basis of qualitative data emerged during administration, insights have emerged valid, useful for research and for clinical and, nevertheless, also proposals for action to improve assistenzali strategies Centres FC against adult users.
Original languageItalian
Number of pages1
Publication statusPublished - 2010

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