Development and Implementation of the AIDA International Registry for Patients With VEXAS Syndrome

Maria Cristina Maggio, Abdurrahman Tufan, Ewa Wiesik-Szewczyk, Maria Alessio, Daniela Opris-Belinski, Sükran Erten, Claudia Lomater, Marcello Govoni, Matteo Piga, Alessandra Renieri, Joanna Makowska, Francesco La Torre, Giacomo Emmi, Elena Bartoloni, Ruxandra Ionescu, Alma Nunzia Olivieri, Sara Monti, Armin Maier, Piero Ruscitti, Djouher Ait-IdirAchille Marino, Antonio Vitale, Rosa Maria R. Pereira, Gaafar Ragab, Ibrahim Almaghlouth, Francesca Minoia, Giuseppe Lopalco, Carla Gaggiano, Donato Rigante, Antonio Gidaro, Jurgen Sota, Stefano Gentileschi, Francesca Crisafulli, Francesca Ricci, Mahmoud Ghanema, Marília A. Dagostin, Karina Jahnz-Rózyk, Gian Domenico Sebastiani, Alessandra Fabbiani, Giovanni Conti, Edoardo Conticini, Sulaiman M. Al-Mayouf, Valeria Caggiano, Ilenia Di Cola, Francesca Della Casa, Maria Tarsia, Derya Yildirim, Alessandra Renieri, Emanuela Del Giudice, Ahmed Hatem Laymouna, Henrique A. Mayrink Giardini, Anna Carrer, Emma Aragona, Salvatore Telesca, Ayman Abdel-Monem Ahmed Mahmoud, Musa Fares Alzahrani, Ibrahim Vasi, Federico Caroni, Gülen Hatemi, Antonella Insalaco, Micol Frassi, Teresa Giani, Alberto Balistreri, Francesco Ciccia, Marco Cattalini, Farhad Shahram, Paolo Sfriso, Amato De Paulis, Nurullah Akkoç, Claudia Fabiani, Paola Parronchi, Monica Bocchia, José Hernández-Rodríguez, Bruno Frediani, Fabio Cardinale, Franco Franceschini, Roberto Giacomelli, Petros P. Sfikakis, Alessandra Renieri, Gian Marco Tosi, Gerard Espinosa, Ali Sahin, Francesca Li Gobbi, Luca Cantarini, Vito Sabato

Research output: Contribution to journalArticlepeer-review

1 Citation (Scopus)

Abstract

The aim of this paper is to present the AutoInflammatory Disease Alliance (AIDA) international Registry dedicated to Vacuoles, E1 enzyme, X-linked, Autoinflammatory, Somatic (VEXAS) syndrome, describing its design, construction, and modalities of dissemination.
Original languageEnglish
Number of pages9
JournalFrontiers in Medicine
Volume9
Publication statusPublished - 2022

All Science Journal Classification (ASJC) codes

  • General Medicine

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